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OK, let's get moving on that stem cell research!

Posted on 2007.01.17 at 18:43
Current Mood: worriedworried
My Mom saw her neurologist today, and was diagnosed with Parkinson’s disease. Does anyone have any experience in dealing with this?

Also, any prayers would be appreciated. Her name is Dvorah bat Sarah.

Comments:


(Deleted comment)
Jonathan
theservant at 2007-01-18 01:51 (UTC) (Link)
Legalized stem cell research, plus medical marijuana for all family members. Thanks for your kind thoughts. It does help.
Wrapped up in books
dithie at 2007-01-18 00:47 (UTC) (Link)
my grandma has had parkinson's for about 7 years now and she's managed it quite well with medication. her hand doesn't shake at all now, really.
i think each case is individual and can progress slowly or quickly.
my thoughts are with you.
Jonathan
theservant at 2007-01-18 01:52 (UTC) (Link)
Well that's encouraging, at least. I still don't have enough info on why they diagnosed this, etc. etc.
otakushan
otakushan at 2007-01-18 03:18 (UTC) (Link)
May she have a complete and speedy recovery.
Jonathan
theservant at 2007-01-18 18:27 (UTC) (Link)
Amen!
thanks
metalclarinet
metalclarinet at 2007-01-18 05:15 (UTC) (Link)
I'm not up on this but last I heard the main treatment was L-dopa (sp) which restores some muscle (nerve) function and reduces tremors. The bad news is that after a couple years, it stops working. The advice was to postpone treatment as long as possible.

People with Parkenson's stay sharp, but appear very wooden and may eventually lose their ability to talk.

Unfortunately, there are a lot of bad ways to go. As discussed a while back, that is why pnumonia is called the old man's friend.

Jonathan
theservant at 2007-01-18 18:29 (UTC) (Link)
Thanks. We are still investigating all of this.
fignewton
fignewton at 2007-01-18 07:20 (UTC) (Link)
I don't have any experience with this, but I wanted you to know that I will be keeping your family in my thoughts.
Jonathan
theservant at 2007-01-18 18:29 (UTC) (Link)
Thanks, that is really nice. Plus, big ups for your icon!
shullie
shullie at 2007-01-18 09:33 (UTC) (Link)
thoughts and prayers with you and your mum xxxx
Jonathan
theservant at 2007-01-18 18:30 (UTC) (Link)
Many thanks.
Myp3uK
sputnik5 at 2007-01-18 16:17 (UTC) (Link)
Keeping your mother (and you) in my thoughts and prayers.

Also, if you have any other info on how far progressed her condition is, and on what basis they diagnosed it, I could ask around about the prognosis.
Jonathan
theservant at 2007-01-18 18:31 (UTC) (Link)
Thanks. I am gathering info on all of this. Or my sister (the doctor) is. She is going to call the neurologist herself today, as Docs seem to speak a special language to each other.
Chavah ("Little Raccoon") bat Sarah
qilora at 2007-01-19 03:05 (UTC) (Link)
just read this now.. i'm so sorry to hear she's not doing well, i'll add her to my list when i read Tehillim...

love & shalom,
Eve & Co.
(Anonymous) at 2007-01-19 13:08 (UTC) (Link)
I will send the Reiki and I can put her name on the altar at the Zen Center if you like.
I listened to that clip you sent me. Very interesting! We'll have to discuss it when I see you guys again!
Release the Kraken!
delerium69 at 2007-01-19 20:04 (UTC) (Link)
*hugs*
Jonathan
theservant at 2007-01-19 20:09 (UTC) (Link)
thanks!
(Anonymous) at 2007-01-20 23:31 (UTC) (Link)
your sister the doc (depending on what kind of doc) is probably the best resource. there's a big range of early symptoms for parkinson's. the knowledge and experience i have are from two angles, if it helps. My schooling is in neuropsych, so i tested people for things like parkinson's, and i worked in neurology for a spell. the other side of it is that i have a good friend whose dad was diagnosed maybe a year ago (it might be two- i can't remember the time exactly). it's been tough on him, in the sense that it's made his dad really human to him, and made him seem vulnerable, even though he is still really healthy. his dad has done really well since his diagnosis- spirits are good and symptoms are not terrible. let me know if you want more info- i'm one of those types who can give the good, the bad, and the ugly, if you really want to know it all.

hang in there- it's a really tough thing for all of you. most of all, support your mom (and yourselves)- a lot of my guys that i diagnosed wound up feeling really guilty that they had somehow caused the upset in their families. wishing you all strength.
-melissa
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